Just saw this link on the Wegener's Forum - Thanks Brian C. for posting it - and thought it was great. It really gets across what I've not been able to. Last few days I've been low on spoons....
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
Thank you for posting this. It is a wonderful way to explain what you have to think about daily. I hope a magical "spoon" fairy gifts you with more spoons soon. Hana
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