Had a wonderful trip to Vancouver with the goils, mom and Hana (the older, wiser version.) We saw Adam, and although I can't speak for the goils, I can say for myself that I had a very interesting and uplifting experience. The positive momentum turn that I mentioned in my last post has continued on its merry way and the weekend in Vancouver just gave it some extra accelerant.
Just as I sat on the couch last year feeling like I've done something drastically wrong and feeling like life is about to take a turn for the worst (two months before the first symptoms, on the day that I came home from getting the H1N1 shot) this weekend gave me a feeling of something drastically right and life taking a turn for the best. The feeling was almost identical but on the opposite side of the spectrum. It was a very good moment, and I hope to report to you a few months from now that I have no symptoms.
Now it's time to go to bed and get some rest. I am fully pred girl, in appearance and in sleep habits. I'm on 30mg now and hoping to get down to at least 20 as fast as I can. Pred saved my life, but it suuuuucks!!!!
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
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