So after the chaos of going through this again and trying to figure what next, I've been recollecting my brain cells into a coherent matter (hopefully without the aid of any granulomas.)
I was lying in bed and wondering about patterns that I've noticed from reading other WG stories and stuff and decided to put together a very unscientific survey that is just for me to settle my curiosity.
If you are a Weggie and would like to put your two cents in, it really shouldn't take more than 5 minutes max, I think it would be interesting to see if there are any patterns that emerge. I've only done the free version so I only have 10 questions on there (I have more but that's for later). I'll post all of the responses and they will be completely anonymous and private. Just a glimpse of stuff with no human names behind it.
Here's a link to the survey, and thanks in advance for doing it up my friends.
http://www.surveymonkey.com/s/LGMC9Y8
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
(if a non-weggie can be so bold as to comment...) how you manage to move forward and continue to help figure out this crazy-ass disease when you are also just trying to get your own feet back underneath you after a flare is a testament to your hard-wiring, my friend. marta-smarta, you absolutely radiate sun-shiny optimism, drive and i'm-on-a-mission passion! but you also need to heal from this recent flare. so... what day can i bring over dinner? and if hana would like to come over and help make it - even better. call me. xoxo
ReplyDelete