I haven't been ignoring, just trying to re-group and it's a long long long process apparently. Been thinking about posting, but the energy level is way down, so I'm mustering to do this and will be back on with updates ASAP.
Peace out y'all.
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Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
Hi, Ive just read your blog and filled out your survey.. I've been battling this thing for five years now. It does gets better, everyone has bad days its just our bad days are a little bit worse than before. The good days are just as good as ever :)
ReplyDeleteThanks Stewart. This is very encouraging. The last several weeks have been very up and down... more down than up, but I totally know that this will pass. I thought things were moving in an upward direction yesterday but today I feel like I've been hit by the ugly stick... in more ways than one.
ReplyDeleteThanks for doing the survey, the results are very interesting and last time I looked there were 74 respondents - if we're one in 30,000 that's a huge part of the population base. I've also got the outline for the book project if you're interested in submitting your story - just let me know and I'll send you a private message with the info - just send me your contact info and I won't publish it.
Hope you are having a lot of good days.
All the best and thanks again for the words of motivation and encouragement.