Here's a little show we did today with Dr. Diane Dike. All I need apparently is someone who is willing to listen and then you can't stop me:
http://www.blogtalkradio.com/dr-diane-dike/2013/02/21/eliminating-autoimmunity-together--one-pajama-at-a-time
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
Thursday, February 21, 2013
Saturday, February 9, 2013
Going Global In Edmonton
Watch Global on Monday evening if you want to see me make a foo-ool out of myself. The amazing Su-Ling Goh is interviewing me about PJ Day. Hopefully we can get lots of people on board.
What does 'on bord' mean?
It means that regardless of what flavour of autoimmunity you have and support, you can put on your PJ's on March 1st and show the world that you're part of a bigger thing. Much much bigger than any of our individual diseases are alone. Together we can bring attention and we can push for research into the lowest common denominator of autoimmunity (which we still don't know about) and if we find that, we will surely find a cure not just for our specific disease (whatever it might be) but for all of us. Isn't that a wonderful thought?
If you want to do a fundraiser of any kind, put on your PJ's and do one and send the money to your favourite autoimmune disease charity that already exists. We don't want to take anyting away from anyone, we just want to show the world how very many of us are out there. Way too many but we still get treated like this is a 'rare disease' and get dismal medical attention most of the time, unless you're lucky and have found a super amazing doctor like I have.
Let's change things and have some fun while doing it.
MONDAY NIGHT: It's now Monday night and the story didn't air tonight. Probably good too because I was a bit of a babbler in the not so good way. Didn't say half the stuff I wanted to but who knows how it will come out - Su-Ling is a pro and will do her best to make it OK. Will keep you posted.
What does 'on bord' mean?
It means that regardless of what flavour of autoimmunity you have and support, you can put on your PJ's on March 1st and show the world that you're part of a bigger thing. Much much bigger than any of our individual diseases are alone. Together we can bring attention and we can push for research into the lowest common denominator of autoimmunity (which we still don't know about) and if we find that, we will surely find a cure not just for our specific disease (whatever it might be) but for all of us. Isn't that a wonderful thought?
If you want to do a fundraiser of any kind, put on your PJ's and do one and send the money to your favourite autoimmune disease charity that already exists. We don't want to take anyting away from anyone, we just want to show the world how very many of us are out there. Way too many but we still get treated like this is a 'rare disease' and get dismal medical attention most of the time, unless you're lucky and have found a super amazing doctor like I have.
Let's change things and have some fun while doing it.
MONDAY NIGHT: It's now Monday night and the story didn't air tonight. Probably good too because I was a bit of a babbler in the not so good way. Didn't say half the stuff I wanted to but who knows how it will come out - Su-Ling is a pro and will do her best to make it OK. Will keep you posted.
Sunday, February 3, 2013
BT up for PJ's
The awesome gang from City TV's Breakfast Television are coming up for PJ Day on March 1st to help us spread the word and get that much closer to finding a common thread and curing all of us autoimmunies - not just Weggies.
I'm so stoked that while doing the happy dance after I found out, I tweaked my back and have been hobbling along ever since. You know, I use to be tougher than that. I could do so much and not feel a thing, but now I jump once from joy and pay for ever after. It's OK though, this kind of pain I'll take.
PJ Day will become a global hit. It's crappy but more and more people are getting sick, and it seems like you really want to do something about it when you or someone you love and watch suffering gets whacked by the autoimmune stick. Apparently there's a whole lot of hitting, so we will all join together one day and change this shitty situation, and our kids wont worry about having to deal with the crap and take toxic drugs that ravage your body in order to stop our immune system from doing the same.
Watch out AI Disease, here we come.
I'm so stoked that while doing the happy dance after I found out, I tweaked my back and have been hobbling along ever since. You know, I use to be tougher than that. I could do so much and not feel a thing, but now I jump once from joy and pay for ever after. It's OK though, this kind of pain I'll take.
PJ Day will become a global hit. It's crappy but more and more people are getting sick, and it seems like you really want to do something about it when you or someone you love and watch suffering gets whacked by the autoimmune stick. Apparently there's a whole lot of hitting, so we will all join together one day and change this shitty situation, and our kids wont worry about having to deal with the crap and take toxic drugs that ravage your body in order to stop our immune system from doing the same.
Watch out AI Disease, here we come.
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