Tuesday, September 27, 2011


Jack's avatar on the forum was
 Leonard Cohen (one of his two fave
artists, the other being 'The Gorilaz')
I will never see Leonard the same again.
I am super bummed about the events of the last few days where yet another great person was taken from this planet by this ugly disease. "Jack sadly died on Friday 23rd September 2011 at 11.05pm UK time"  - we were informed by his loving family. He was diagnosed in 1988 and has gone through many years of intense drug therapy and ups and downs due to both the disease and the treatment.

Jack was an inspiration to everyone who went on the Wegener's Forum for advice, guidance and camaraderie amongst those in the battlefields of Wegener's Granulomatosis. His awesome sense of humour and compassionate ways made the worst of days better and most uncertain of situations bearable. He was quick, witty, economical with words (something I very much envy) and full of wisdom and unfortunately lots of experience with dealing with Wegener's and the medical profession.

This is something he wrote to me not that long ago. "Hope you continue to improve, you have certainly come a long way in the past year and although you will never be the same person, you might even be a better one!"

Love you Jack. Rest in Peace wherever you are and know that you will be alive in our hearts as long as we're here, and after that.... we'll see you on the other side and party without stupid Wegener attached.

1 comment:

  1. Well said Marta, you may envy Jack's economy with words but your eloquence is to be admired.

    Yes Jack will be sorely missed by all who knew him, there's the rub, he was a 'cyber friend' We dont even know what he looks like and yet we grieve as if we have lost a member of our family.

    When I catch up with him, we'll sink a few pints like we discussed.Till then, Keep Safe Jack.

    Missing you loads already, Geoff