So it's been just over a month since my first Rituximab infusion and things are looking brighter. I had a bit of a dip but it seems to be clearing itself up. One little downside is that after just one day back at Nursery School, Hana got some bug and now I think I might have gotten it from her as well. That kinda bugs me. I know that those environments are little petry dishes, but it's so blatantly obvious that it makes me a little angry. I had been keeping her from school the week before the second infusion as I couldn't get anything or the whole thing would be a waste, a $10,000 waste as well as my chance at getting healthier. Then there were two weeks of holidays for Spring Break. We've managed to stay healthy for a long time while the world around is sniffling... then off she goes to school on Monday and is sick by Wednesday. I just started coughing this morning but I believe now that I have no B cells, my immune response is slower. Hopefully this blows over soon and healing continues.
Woo hoo Rituximab!
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
I hope what Hana cought and brought home for you will not make you too sick for too long. Hopefully the rtx will kick some serious ass soon and you can taper on the pred. Not to fast of a taper though.
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