It's another beautiful day in paradise. I looove the snow. It makes everything look and feel so fresh and new, and this feeling of newness is more precious now than it has ever been in the past.
I've gone for a couple of skis in the last week. I can only pull of a couple of runs at a go, but man does it ever make me feel good. It really gives me that sense of 'normal' that I so yearn for. I forget about my cheeks, and my achy body, and my perma-headache, and my owy ears and stuffed up nose.... all I focus on is making those perfect little turns and staying upright and feeling the wind in my gigantic face. I'm also a huge fan of muscle memory, because despite huge deconditioning over the last year, I can still pull it off and feel like I know what I'm doing. Oh and Hana took a lesson yesterday (after skiing with us with a leash since last winter) and she can officially ski on her own, no leash, turning perfect little turns and stopping. I was watching her yesterday and bubbling over with momma pride. She's quite a little thing. I love that little thing. Still can't believe she came out of my gut.
I go for a CT scan on the 15th and see what's really going on in the vast empty caverns known as my head. Hopefully not too far behind that is the rtx infusion and then remission. Ahhh, that magical word - 'remission' . There is a lot of virus action going on in town and I have to keep myself from getting sick as that will keep me from getting the treatment. I have a snotty, coughy four year old who loves to cuddle (as do I) so there's a lot of hand washing and sanitizing going on. Gotta be ready for the big treatment at the drop of a hat.
Here here to fresh and new!
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
My turn to go for a few runs!
ReplyDeleteYou go baby! Make a few for me. I understand there's a shitload of snow at the hill today.
ReplyDeleteHere here! Fresh and new is on it's way, I can feel it!
ReplyDeleteMy best friend got diagnosed yesterday. Very sick. Now that they know what it is, hopefully, the drugs now being given will kick in and help her. I want to stay optimistic, but I'm worried.
ReplyDeleteHey Anonymous,
ReplyDeleteI'm sorry to hear about your best friend. She's about to go on quite a journey. Check out the link on the right hand side Wegener's Granulomatosis Forum. There is a lot of useful information there and some great reads for newly diagnosed. It has saved my butt on many occassions. Please feel free to contact me if you have any questions, and all the very best to your friend and you. She's lucky to have someone there who cares for her. It's a very confusing and uncertain time in the beginning. Who am I kidding, it still is, but I've learned to deal with it a little better.