tag:blogger.com,1999:blog-966532239545289339.post2466841195351328300..comments2020-01-14T08:23:03.053-07:00Comments on Weggies Unite: Love ya Al!martahttp://www.blogger.com/profile/13570308856192525447noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-966532239545289339.post-54626464691688404842012-10-29T07:05:09.919-06:002012-10-29T07:05:09.919-06:00hey! i have resently been told i have this bizzare...hey! i have resently been told i have this bizzare condition im finding it hard to get my head round it ive had 2 lots of chemo and am on steriods 60mg which i dont like they seem to make me hyper im like a naughty kid lol luckly the chemo doesnt make me to ill so far it seems very odd that 2 months ago i was a 4 times a week gym freak now i get puffed out thinking about the gym im lucky to have a great family to surrport me and a great team at the hospital they really did pick up on it very quickly thankfully and got me on the right meds. im back at work on light dutys i cant stay home it drives me insane. i have had a couple of times where i just said what the hell and went out and got hammered but i have to stop that as im sure its not a good idea but its very hard to think about the anormatiy of it all. im only 43. i am very upbeat about this 98% of the time and talking really does help but trying to explain to others is difficult so they goggle it come up with mostly horror storys then feel pity for you or get upset :( i hope you are feeling ok ian sargenthttps://www.blogger.com/profile/01739662097236134392noreply@blogger.comtag:blogger.com,1999:blog-966532239545289339.post-59283662124311922692012-08-12T20:46:24.659-06:002012-08-12T20:46:24.659-06:00Hi Marta,
I've been MIA for the past few mon...Hi Marta, <br /><br />I've been MIA for the past few months but I've been trying my best to follow your journey!<br />My heart is very heavy for you and the loss of Al. Everytime Wegener's takes another victim I feel like we have lost to the enemy. You will be in my Thoughts & Prayers. Sending Good Thoughts and VERY positive energy! <br /><br /><3 <br /><br />-A Weggie Like You- :)APlaceICallHeatherhttps://www.blogger.com/profile/01193088804167093880noreply@blogger.comtag:blogger.com,1999:blog-966532239545289339.post-72383434086073050892012-08-07T07:02:49.886-06:002012-08-07T07:02:49.886-06:00Hi Marta, I have not been on your blog site for a ...Hi Marta, I have not been on your blog site for a while. I am sorry to hear about your friend Al. What an emotional journey you are on. I have so much admiration for you... you are one tough cookie girl! Such an amazing advocate for your fellow Weggies worldwide! wowzers! I have a hate on for Pred as well. My son is on it 5 days a month (50mg per day) yuk! He was recently switched to Pred from Dex because the side effects of Dex were just awful...he seems to tolerate Pred better...imagine that! I really dislike the stuff and what it's doing to my little boy's personality however it's keeping the cancer away so there you go. I think of you often and send you positive vibes. Your amazing attitude is just awesome. Brenda Toner-MurchisonAnonymousnoreply@blogger.com