It's been a while but I just had noteworthy moment and had to share with people on the scary end of this ride. The steps toward that normality, that seems so elusive on some days, are small and sparse, but they do come. Once I get one little element of my old life back I get the zango to push forward... and each achievement is much more special now in something that was perhaps taken for granted in my pre-Weggie life.
I've managed to shed enough pred pounds and am one step closer to 'normal'.
Today I put my Wedding Ring back on my finger after a three year hiatus.
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
